Tuesday, March 31, 2009
Monday, March 30, 2009
Sunday, March 29, 2009
Saturday, March 28, 2009
Friday, March 27, 2009
Hello everyone . The song that Ken put the slideshow to yesterday was called, she sings her song. Iwrote it about the children show suffer the affects of agent orange, cancers, musculoskeletal problems all because of a herbicide, sprayed on the ground to kill all folliage. It was used in Vietnam to destroy the jungle, a two fold approach at warfare, take away the enemies hiding places and destroy thier source of food..
Thursday, March 26, 2009
Wednesday, March 25, 2009
Hello everyone today is the day.
Tuesday, March 24, 2009
What a difference a day makeshttp://3.bp.blogspot.com/_lNHD6_ExSMg/ScjJw9gRipI/AAAAAAAAABQ/cM9DKq0WcSE/s320/DSCF2456Copy.jpg
Sunday, March 22, 2009
well the photos may seem odd, but I do have a point.
Saturday, March 21, 2009
Thursday, March 19, 2009
Wednesday, March 18, 2009
Ken and I are on our way home from Eugene with our plan for the next 7-8 months.
I found it extremely difficult being in the cancer centre, waiting room, but once in the office, I was OK.
The radiation oncologist explained that it was a bit like firefighting
The fire crew puts out the initial fire (the surgery), then the radiation takes care of the surrounding houses, dealing with potential burning embers. The chemo takes care of the rest of town. ..... Well something like that.
I looked so nervous, I think she felt sorry for me and moved up the PET scan to next wednesday, and I will be able to start chemotherapy that day as well.
I think I have come away with a better understanding of where I am at in this process.
The chemo doctor explained it this way. There is a possibility that my surgery may have cured my cancer, however there is no way to know if there are microscopic spread, because there were positive nodes. She also said that because there were positive nodes, it means that we know this cancer is capable of setting up camp in a distant place. The chemo doctor said that the truth of the matter is that there are many people who receive chemo and radiation that likely do not need it, however it is impossible to tell, so everyone at this stage must go through this.
And so...it starts next Wednesday
Ken and I have decided to take this on, the good with the bad. We stayed at La Quinta hotel and they have a very special rate for anyone with a medical need and in fact they said even a better rate for when we are staying for 4 or more days a week. I know this would not be for everyone, but we are wanting to look at this like a little holiday, and try to make it special. The hotel is right on alton baker park and we spent this morning walking along the trails watching all the ducks geese herons and other birds......extremely therepeutic. It is a 1 mile walk to 5th street market and a 5 minute drive to the cancer centre. Perhaps I will just stay on radiation forever, or at least just TELL EVERYONE I am going over to Eugene for the radiation....(after it is all over)
I have to say I am becoming more and more positive about all of this, I will feel much better after the PET scan however neither oncologist seemed to expect to find much, so that seems to be good.
I know that there will be days I am very tired during the chemo, and for this I have (with Linda and Ken) created a very complex bird feeder neighbourhood just out my dining room window. We found several very cool birdhouse/feeders at Schindler and our local hardware store. (theres a green one and a red one a blue one and a yellow one and they are all made of ticky tacky......) Actually they are very cute, we also got a birdbath, which also might attract them (as long as chewy doesn't scare them away) Also planted a few colourful flowers......
We also got going on our garden, planted several veggies.
I have also decided to start listening to all the advise people have been giving me. I guess I have not been wanting to rest, because I have been wanting to prove to myself that I am healthy, and I think I will change my approach. I have been more tired lately and think that the stress of surgery and the psychological stress is starting to weigh on me. So will try to rest each day and to exercize and find a balance.
They have told me for certain that my hair will all fall out and I am considering an extremely different approach, you know I always have to be different. I am thinking of having my hair braided with the corn braids......you know like bo derek
and then when they fall out, I can collect them all and glue them to a hat.
If anyone knows someone local who does those braids, let me know, I have found a lady in Eugene who I think will do it this weekend, however it would be easier in Bandon.
I am going to have the pictures taken for my cd cover in the next couple of days, while I still have hair.
Love and peace to all
Sunday, March 15, 2009
Thursday, March 12, 2009
FIrst of all, I wanted to tell everyone that the reason for this blog is to explain to anyone who is interesting in what is happening with me and this cancer..............in detail ......and not need to repeat myself.
No one needs to comment, and I would much rather if you emailed me at firstname.lastname@example.org than comment.
I have received so many wonderful emails, and I continue to be impressed by the thought that goes into them. The emails truly help me and make me more confident, so please don't hesitate to write. They also make me refocus when I am down.
Ken and I are on our way home from seeing my Doctor. We are filled with new hope.
Dr Dotters presented my case to the tumour board yesterday morning. Together they worked out a plan of attack. She said that all these doctors were extremely hopeful that we will achieve a cure. She said that years ago when she was a resident stage 3c patients (which I am) often died, however she said she cannot think of a 3c in many years now who has.
The other very encouraging news that she gave me is that many of the studies I have been reading about 5 year survival rates at my stage, are somewhat misleading. (I had read that it was 50 percent)
First of all I am about the healthiest I could be and second of all, they have only been treating stage 3c endometrial cancer with both Chemo and radiation for a few years, and so really that does not really even enter into my situation.
(a funny aside) the nurse who was checking me in said I seemed to be moving about quite easily (for being 2 weeks post op) Ken said" she walked 6 miles yesterday and 4 miles the day before that". She looked shocked, and so I said well the instruction sheet said for me to start walking on the second post op day, and to increase from there...., and so I did......she laughed and said, well no one actually listens to that stuff.
Dr Dotters said that "the team" at the cancer centre had told her to make certain I knew how confident they were in a cure.
I have a PET/CT scan booked on the 27th, which is to look for any other evidence of disease. This scan would not pick up microscopic disease, and so chemo therapy is necessary.
I will have my consult with radiation oncologist and chemo oncologist in the next few weeks and then I will likely start Chemo therapy the week after the 27th of march.
It will involve 3 treatments with 2 drugs. I will get an infusion of two drugs one day, then likely stay another day for another drug to raise the blood count and then I will have nothing for another 3 weeks, and then it will start all over
So that will take 9 weeks.
Apparently the riskiest times will be 10 days after each dose of chemo, because then I will be at highest risk of infection, so will need to stay away from sick people
Somewhere in there I will receive one dose of internal radiation, which is apparently a brief blast of high dose radiation to a small area internally.
THEN after chemo finishes I will start 6 weeks of radiation to the lower abdomen (once a day 5 days a week)
Then I will do the chemo again for one more set (9 weeks)
and then.........I will be cured and will go on and lead a normal happy life, richer for the experience....... :) maybe with a few songs
that are not about war.....
I have to add a little thing about my doctor. In her office was a letter about her own cancer. She has just completed chemo and radiation for breast cancer, and in her note she said "when her doctors told her that they felt she would need to undergo chemo and radiation she said "bring it on"
I am looking forward to the party on Saturday which is going to be at 5 pm, and I would hope that anyone who would like to would come.
Love and peace